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Dr. Allen Frances: February 2010 Archives

February 2010 Archives

Should DSM-5 Expand the "Epidemic" of ADD?

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Our country is in the midst of a 15-year "epidemic" of attention deficit disorder. There are six potential causes for the skyrocketing rates of ADD, but only five have been real contributors. The most obvious explanation is by far the least likely: that the prevalence of attention deficit problems in the general population has actually increased in the last 15 years. Human nature is remarkably constant and slow to change, while diagnostic fads come and go with great rapidity. We don't have more attention deficit than ever before; we just label more attentional problems as mental disorder.

The "epidemic" can be traced to a complex interaction among five other contributors: 1) wording changes in DSM-IV (published in 1994); 2) heavy marketing and advertising from drug companies to doctors as well as the general public; 3) extensive media coverage; 4) pressure from parents and schools to control unruly children; and 5) the use of stimulants for performance enhancement.

There is controversy about whether the resulting increased prevalence of ADD should be the cause for celebration, concern, or perhaps both. Some believe that the higher rates mostly reflect the useful identification of ADD in patients who were previously missed. No doubt, increased diagnosis has been helpful for many people who otherwise would not have received appropriate treatment with stimulus medication. But this gain must take into account the serious costs to many others. Some of the increased prevalence of ADD (no one can tell for sure what proportion) results from "false positives," people who would be better off having never received a diagnosis. The rapid expansion of stimulant use has undoubtedly led to unnecessary treatment with medications that sometimes cause harmful side effects and complications. There is also a large problem with stimulant abuse for purposes of performance enhancement and intoxication; both lead to the development of a large, illegal secondary market for stimulant drugs.

DSM-5 will become the official manual for psychiatric diagnosis when it is published in 2013. The recently posted first draft contains a number of suggestions that would make it even easier to get a diagnosis of ADD: 1) raising the age before which onset of symptoms must occur, from age 7 to age 12; 2) dramatically reducing the symptom threshold for adult ADD; 3) removing the requirement that there be accompanying clinically significant distress or impairment; and 4) allowing the diagnosis of ADD in those who also have the diagnosis of autism.

In developing DSM-IV, we hoped to be careful and conservative. We believed that the diagnostic system should remain stable unless there was compelling evidence that change would be more helpful than harmful. We performed an extensive field trial that predicted (it turned out incorrectly) that our wording clarifications would not change the rates of ADD. Our experience proved that even small changes in the diagnostic criteria can have large unintended, and often unfortunate, consequences (particularly if the drug companies find a way to amplify the effects of their medications).

The changes suggested for DSM-5 are radical and could add fuel to the fire of the already raging "epidemic" of excessive diagnosis and treatment of ADD. I would suggest there be a careful risk/benefit analysis, which should include input from the public and consideration of public policy implications, before any of these changes are made official.

Problems with attention and hyperactivity are very common in the general population. There is no clear boundary to determine when these can be considered as no more than normal variation and when they are best labeled and treated as mental disorder. There are also many causes for distractibility other than ADD, including mood and anxiety problems, substance use, insomnia, stress, overextended scheduling, and many more. If the requirements for diagnosing ADD are too stringent, true cases will be missed. If they are too loose, innocent bystanders will be captured. Right now the criteria are, if anything, too loose, and I fear the results if DSM-5 makes them even looser.

My full review of the DSM-5 drafts can be accessed HERE.

Invitation to Review Drafts of DSM-5

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The first drafts of the fifth edition of the Diagnostic and Statistical Manual (DSM-5) will be posted at www.dsm5.org between mid January and mid February 2010. There will then be a period for public comment ending in March 2010. I would encourage anyone interested in attention deficit/hyperactivity disorder, autism, learning disabilities, conduct disorders, or any of the other DSM disorders to take advantage of this opportunity to review and comment on the changes proposed for DSM-5.
DSM-IV-TR, the current DSM edition

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In May 2013, DSM-5 will become the official method for diagnosing mental disorders used throughout the United States. As such, it will have an impact on insurance reimbursement, the provision of special services in schools, and disability determinations. I was chair of the DSM-IV Task Force. Recently I have felt the uncomfortable responsibility of pointing out the many problems in the way DSM-5 is being prepared. I am concerned that a problematic process may lead to a DSM-5 product with unfortunate unintended consequences. In later blogs I will comment on various disorders of particular interest to this audience. It is important that you participate and make your views known.  

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