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Dr. Allen Frances: May 2012 Archives

May 2012 Archives

The American Psychiatric Association just reported a surprisingly large yearly deficit of $350,000. This was caused by reduced publishing profits, poor attendance at its annual meeting, rapidly declining membership, and wasteful spending on DSM-5. APA reserves are now below “the recommended amount for a non-profit (reserves equal to a year’s operating expenses)."

APA has already spent an astounding $25 million on DSM-5. I can't imagine where all that money went. As I recall it, DSM-IV cost about $5 million and more than half of this came from outside research grants. Even if the DSM-5 product were made of gold instead of lead, $25 million would be wildly out of proportion — the rampant disorganization of DSM-5 must have caused colossal waste. One obvious example is the $3 million spent on the useless DSM-5 field trial — with its irrelevant question, poorly conceived design, and embarrassing results. 

Because APA is left holding these huge IOU's, it will be doubly desperate to begin recouping its misguided investment. The bad financial report will ratchet up the pressure to publish DSM-5 as scheduled next May in its current sorry state — despite the fact that it has badly flunked its own field test and now still requires extensive editing and retesting before being anywhere near fit for use. 

The only way to restore credibility to DSM-5 would be postpone its publication until it can be done right. This means reinstating the quality control step that was cancelled when DSM-5 kept failing to meet its own deadlines. Prematurely publishing a poor quality DSM-5 would be nothing less than a cynical business ploy — violating what should be APA's sacred duty to protect the public trust.

Were any more proof needed that APA has forfeited its right to monopoly control of psychiatric diagnosis, this is the smoking gun. Psychiatric diagnosis has become too important in too many decisions affecting peoples' lives as well as public policy to be left in the hands of a small, withering, cash strapped, and incompetent association that will feel compelled to regard its bottom line as more important than having a safe, scientifically sound, and widely accepted diagnostic system.

From the very start, APA has treated DSM-5 more as private publishing asset than as public trust. All DSM-5 participants were forced to sign confidentiality agreements. Rather than encouraging the necessarily open process that Bob Spitzer was fighting for, APA chose to protect its 'intellectual property' — as if this should ever trump getting out a quality DSM-5. APA is remarkably alert and aggressive at protecting its trademark and copyright, but surprisingly slack and sloppy in doing what needs to be done to produce a document anyone can trust at a price the association could afford.

DSM-5 must now become a public trust — not an APA publishing asset necessary to cover a shortfall in its budget. The overall message couldn't be clearer: APA has forfeited its right to hold the monopoly over psychiatric diagnosis. Guild interest should never trump public interest.
Sigh of relief. The DSM-5 website announced this morning that two of its most controversial proposals have finally been dropped. We have dodged bullets on Psychosis Risk and Mixed Anxiety Depression. Both are now definitively rejected as official DSM-5 diagnoses and instead are being exiled to the appendix. And one other piece of good news-the criteria set for Attention Deficit/Hyperactivity Disorder has been tightened (not enough, but every little bit helps).
 
The world is a safer place now that “Psychosis Risk” will not be in DSM-5. Its rejection saves our kids from the risk of unnecessary exposure to antipsychotic drugs (with their side effects of obesity, diabetes, cardiovascular problems, and shortened life expectancy). “Psychosis Risk” was the single worst DSM-5 proposal -- we should all be grateful that DSM-5 has finally come to its senses in dropping it.

For the first time in its history, DSM-5 has shown some flexibility and capacity to correct itself. Hopefully, this is just the beginning of what will turn out to be a number of other necessary DSM-5 retreats. Today's revisions should be just the first step in a systematic program of reform -- a prelude to all the other changes needed before DSM-5 can become a safe and scientifically sound document.

The turnabout here can be attributed to the combination of: 1) extensive criticism from experts in the field; 2) public outrage; 3) uniformly negative press coverage; and, 4) the abysmal results in DSM-5 field testing. The same factors working together should deep six many of the other risky DSM-5 proposals. This is certainly no time for complacency. Much of the rest of DSM-5 is still a mess. The reliabilities achieved for many of the other disorders are apparently unbelievably low and the writing of the criteria sets is still unacceptably imprecise. The following specific issues need to be addressed. 

1) Why introduce Disruptive Mood Dysregulation Disorder when it has been studied by only one research team for only six years and risks further encouraging the inappropriate use of antipsychotic drugs for kids with temper tantrums?

2) Why have a diagnosis for Minor Neurocognitive Disorder that will unnecessarily frighten many people who have no more than the memory problems of old age? 

3) Why insist on removing the Bereavement exclusion- thus allowing the inappropriate diagnosis of Major Depressive Disorder in people who are experiencing normal grief?

4) Why open the floodgates to even more over-diagnosis and over-medication of Attention Deficit Disorder (by raising the allowed age of onset to 12)?

5) Why dramatically lower the threshold for Generalized Anxiety Disorder when this will confound mental disorder with the anxiety and sadness of everyday life?

6) Why combine substance abuse with substance dependence under the rubric of Addictive Disorders- when this confuses their different treatment needs and creates unnecessary stigma for many young people who will never go on to addiction?

7) Why include a category for Behavioral Addictions that will open the door to the mislabeling as mental disorder all sorts of normal interests and passions? The DSM-5 suggestion to include Internet addiction in the Appendix is an ominous first step.

8) Why include wording in the Pedophilia criteria set that will invite further forensic abuse of the already much misused Paraphilia section?

9) Why label as mental disorder the experience of indulging in one binge-eating episode a week for three months?

10) Why introduce a system of personality diagnosis so complicated it will never be used and will give dimensional diagnosis an undeserved bad name?

11) Why not delay publication of DSM-5 to allow enough time to complete the previously planned and crucial second stage of field testing that was abruptly cancelled because of the constant administrative delays in completing the first stage? This is the only way to guarantee acceptable reliability. We should not accept ambiguously worded DSM-5 diagnoses whose reliability barely exceeds chance?

12) And most fundamental. Why not allow for an independent scientific review of all the remaining controversial DSM-5 changes. This has been proposed by fifty-one mental health organizations as the only way to guarantee a credible DSM-5? 

The public has 6 weeks to comment on the current DSM-5 suggestions. Then there will be a round of final decisions- with everything probably sewn up by mid-fall. This opening chink in the previously impervious DSM-5 armor should spur renewed efforts to get the rest of DSM-5 right. 

For more on the latest revisions of the DSM-5 criteria sets, see http://www.dsm5.org/Pages/Default.aspx

Take this last opportunity to be heard.

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